Sunday, April 7, 2013

Day 10 & 11 - Our first bad day

Besides getting the news for Shawn's surgical plan, Friday was a relatively dull day in terms of Shawn's recovery and improvements.  He was negative on fluids so his swelling continues to lessen (slowly but surely) and further decreasing his medications.  Beth and I were able to change Shawn's diaper a couple of times so that was exciting.  Never thought I'd see myself be excited about changing diapers!

Yesterday flat out stunk!  Shawn evidently is growing tired of being a poster child of recovery and felt like being a little rebellious.  He is now having an irregular heart beat or arrhythmia.  It's very scary as a parent when first off you don't know what that means and secondly you have no idea the severity of the complications it can cause.  To put it simply it is not good in the long term but for the short term Shawn seems to be tolerating it well. The doctors and nurses are alerted by it but not alarmed.  Sometimes these heart kids just start this and it can last for a couple hours to a couple days.  In Shawn's case the strong belief is that since his swelling is going down his heart is now irritated by the rather large metal stent inside it.  His numbers still look good and his blood pressure is handling it well so the action plan moving towards Thursday is, "Keep an eye on it."

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