Day 8 - Happy 1 Week Birthday, Shawn!!

Well you were brought into this world 1 week from yesterday with quite a splash!  Your head at 9:46 am and the rest of your body 4 minutes later.  The last week has not been without its ups and down... mostly in oxygen saturations (a little inside joke for me and him), but you have blown away our expectations.  You have inspired us all with your strength and resolve.  Please continue to persevere and know that you have a massive community of support and the prayers of many behind you, cheering you on.  We love you, my son....my little heart warrior!

 Shawn, 1 week old!

Yesterday they already discontinued the lung percussion therapy since his x-rays looked good.  That's good since I saw them do one yesterday morning before rounds and boy oh boy did he not like that!  He is off insulin and continuing to ween off the dopamine.  His breast milk feed is up to 10 mL/hr now.  They are scheduling an echo for today to get a full and complete pic of his heart.  Every Friday they have a surgical meeting to discuss any upcoming surgical planes.  Tomorrow Shawn will be the feature topic.  So hopefully after tomorrow morning we'll have a better idea about the whens, whats, whys, and hows of his next procedure and possibly the game plan for future procedures.

His big boy socks!